The promise of precision medicine requires that treatment plans for chronic conditions consider the daily-living routines of patients. And for this, we need health information technology that integrates clinical and consumer data to make information produced in one setting accessible in the other.
We are not there yet. More field studies must be conducted to inform the design, implementation and evaluation of these collaborative information technologies.
This study will present the findings from just such a field study, and share the implications for technology design, clinical practice business models, and policy.
• Precision medicine efforts should integrate important characteristics of a patient’s daily routine and living context into therapy plans.
• Gaps between clinical and daily living settings can lead to a lack of adherence to therapy. These gaps can be avoided with collaborative health information technologies.
• Patients develop various adaptive strategies to mitigate the consequences of the gaps between clinical and daily living settings. More systematic strategies should be developed without losing the advantages of these ad-hoc strategies.