Unprecedented opportunities exist in healthcare today to transform research and population health initiatives through health IT. In 2007, the National Academy of Medicine called on U.S. healthcare institutions to share data from routine care through the creation of learning health systems (LHS).
In 2016, Biogen, a biopharmaceutical company specializing in neurology and neurodegenerative diseases, designed an LHS to elevate research beyond the confines of clinical trials. The effort, called Multiple Sclerosis Partners Advancing Technology and Health Solutions (MS PATHS), is a unique collaboration between 10 healthcare centers in the United States and in Europe.
This presentation will describe how the centers collaborated with Biogen to create an integrated, efficient data collection system for conducting research with the aim to improve clinical outcomes for patients with multiple sclerosis.
• Define the fundamental components of a sustainable learning health system (LHS) and the processes required for successful implementation.
• Explore how efficient data normalization and system interoperability can overcome data collection challenges and drive evidence-based initiatives within an LHS.
• Evaluate how an LHS can speed research initiatives and function as the foundation for population health, precision medicine, and patient engagement strategies.