Session ID: 

Increasing Patient Agency: The Patient Data Use Agreement

4:15pm - 5:15pm Tuesday, March 10
Orlando - Orange County Convention Center


Opportunities are growing for individuals to access and aggregate their health data using health apps and patient portals. Most of these services require individuals to enter into agreements with terms that typically do not favor the individual or give the individual agency over their data. A model patient data use agreement with terms that empowers individuals can provide people with the opportunity to truly manage and control their aggregated health data. Personal agency over data may also increase patient engagement and activation, improve self-management and outcomes, and improve the breadth and depth of data available for shared decision making, care management, and research.

Learning Objectives

  • Explain contractual terms common to health apps and patient portals
  • Identify benefits of increased patient agency over health data
  • Compare and contrast model agreement terms to existing agreements to model ways to increase patient agency


Health Policy Analyst,
The MITRE Corporation

Continuing Education Credits



Advocacy Grp Focus on Pt, Family Mbr, Caregiver
Consumer Groups
Government or Public Policy Professional