Session ID: 

Improving Health Outcomes Through Person-Driven Interoperability How Health Data Rights Management Enables Better Care

2:30pm - 3:30pm Monday, March 9
Orlando - Orange County Convention Center
Additional Registration
Extra Fee


One in four individuals will struggle with a mental health or substance use disorder (SUD) at some point in their lives. A person's mental well-being is often closely correlated with physical health conditions, and with social determinants such as instable housing and food insecurity. Yet it is rare for behavioral health providers to share patient information with a primary care physician, or for social service and community organizations to disclose data where authorization is necessary for data to be shared. With reimbursement for healthcare increasingly tied to better coordination among the entities associated with a person's health, there is a compelling need to fundamentally shift how consent for sharing and using individuals' data is managed within and among communities.   UHIN has taken the first step to make this shift, working with the 3M Company and CedarBridge Group, to pilot the Health Data Rights Management (HDRM) concept for consent. Similar to how Digital Rights Management (DRM) led to tectonic shifts in business models and consumer choices in entertainment, the HDRM solution will empower individuals to control how their health data is shared and used across organizational and vendor boundaries. HIEs such as UHIN will create new revenue streams through novel use cases that will be enabled by patient-mediated data exchange.
This session is part of a special program called Interoperability and HIE Symposium. Extra fees and separate registration is required.
This session is part of a special program called HIMSS20 Interoperability/HIE Symposium. Extra fees and separate registration is required.

Learning Objectives

  • Describe the structure of using blockchain for Health Data Rights Management and why it is better than a simple distributed database for Data Interoperability in Healthcare Consent Applications
  • Evaluate the setting where a blockchain based structure may be applied, its potential and its limitations in a Behavioral Healthcare setting utilizing existing HIE infrastructure and partnerships
  • Outline the legal implications of Consent Management and Health Data Rights Management issues surrounding Interoperable Healthcare Data


CedarBridge Group
Chief Medical Informatics Officer,

Continuing Education Credits



Clinical Informaticists
Data Scientist
Government or Public Policy Professional