Democratizing Patient Data: A Story of Patient Empowerment
3:00pm - 4:00pmThursday, March 8
Las Vegas - Venetian Convention Center
The most critical member of the care team, the patient, is being left out. Their data are not captured in a way that can be leveraged at home by patients, or in the clinical setting by providers. There are few patient-facing tools designed to support their daily care at home, or capture how they are doing between appointments. This patient-caregiver session shares the challenges encountered when managing complex chronic conditions, and the strategies and technologies they leveraged to become active partners with their providers. This unique session offers both patient and caregiver insights into managing pediatric chronic conditions, the value of patient-generated data, tangible strategies and solutions used to support recovery, and an update of the patient empowerment research that was inspired by their experience.
Discuss the barriers preventing clear communication from patients to providers, and describe patient-facing tools and strategies that support bi-directional communication
Show how the use of patient-generated health data can improve health outcomes, and discuss how this data can be integrated into the clinical setting
Demonstrate, with real-world experiences, how patient-facing tools can be leveraged to engage patients and their caregivers with their health, and empower patients to effectively manage their care outside the clinical setting
Explain why policies that incentivize the use of patient-generated data, and clinical studies that measure the benefit of this data, are necessary to the availability and use of patient-facing tools