Standards such as DS4P and C2S allow for granular tagging of sensitive data elements to support patient privacy preferences while promoting interoperability but have not been widely adopted and they do not address many common clinical pain points for providers and patients. A developing workgroup of multidisciplinary experts is building on work started by the DS4P/C2S standards in order to produce recommendations for future standards development and a consensus-driven implementation guide to facilitate industry-wide adoption. We have defined two use cases to frame relevant issues from various stakeholder perspectives. We seek input from relevant stakeholders as we identify ongoing leaders for this work and identify discrete deliverables and next steps for this project. Join us to advance the conversation with a broad stakeholder group so patients and families can benefit from accurate exchange of information with confidence that their wishes regarding data privacy are respected.